Influencer Lauren Cummings Johnson Mourns Death of 9-Month-Old Baby Girl

Influencer Lauren Cummings Johnson and her husband Wilson Johnson's daughter Lily Ann has died at age 9 months.

By Corinne Heller Apr 13, 2025 9:06 PM
| Updated Apr 13, 2025 11:34 PM
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Watch: Influencer Lauren Cummings Johnson Mourns Death of 9-Month-Old Baby Girl

Lauren Cummings Johnson and her family are in mourning after a tragic loss.

The lifestyle influencer and her husband Wilson Johnson have announced that their daughter Lily Ann has died at age 9 months.

"Our sweet Lily Ann went to be with Jesus on Sunday, April 6," the couple wrote in an Instagram post, alongside photos of themselves embracing their baby girl. "She was exactly 9 months old, 9 months our beautiful miracle, 9 months of a love, joy, and sunshine in our home and hearts."

The message continued, "We are so incredibly grateful for the promise of Heaven and the hope we have in our Heavenly Father. His ways are higher and better than ours, even when we don’t understand it. He blessed us every single day for the past 9 months and we will never be the same."

Lauren and her husband did not share the cause of their daughter's death. The influencer had explained to her followers last year that Lily Ann had been diagnosed shortly after birth with Citrullinemia type 1 (CTLN1) and remained in hospice care at home.

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The rare genetic condition is caused by an enzyme deficiency, which can lead to a buildup of ammonia in the body, according to the National Organization of Rare Disorders.

Insagram / Lauren Cummings Johnson

Lauren had shared several pics and health updates about her daughter over the past few months. In February, the family celebrated Lily's first Valentine’s Day and the emergence of her first tooth. 

Insagram / Lauren Cummings Johnson

Lauren and Wilson's daughter will be laid to rest at a funeral at a Nashville church April 14.

"It was the honor of our lifetime to get to share her with the world," the couple wrote in their latest Instagram post. "We know so many of you loved her and prayed for her. She was pure joy and sunshine! Thank you all for loving her and us the past 9 months!"

The two continued, "We always said she was a real life angel. What a blessing it was to be her mom and dad. Thank you Jesus and thank you Lily Ann for changing our lives forever!"

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